Living with a disabled child

I know I am not the only one out there. I have read many stories and felt as though I could have written them myself. Having a child is not the easiest job in the world and when you are given a special gift it makes your job even harder. The doctors appts, the medications, the trips out of town to specialists...it all takes a toll. and that is just the beginning.
Parents need an outlet, other parents to talk to, a place to meet and breathe. So through my experience (and since I have not found one here in town as yet), I am thinking of starting a group where parents can meet locally, we can have playdates and learn from eachother, support eachother and just be there for eachother.
My son has complicated epilepsy, asperger's (about to find out if it is more as he had only been diagnosed by a pedi), severe asthma and allergies and something wrong with his immune system which we will soon get more answers for as well. So I am looking for parents who live in and around panama city who would like to try this. And if one for these things already exists, please let me know! I really need other's to talk to. It has been over 6 years and while we are finally getting answers and understanding more, this is far from easy.
Also, things people outside of my family can do ius, be there for us. We have 8 children. Yes, that is a lot. Yes we know how they are made... We did not expect to have a child with issues as a lot of his are from his birth itself. You just do not plan your life thinking of these things. Can you imagine if we did? We would live in such fear and not even have children. This is a chance you take. So when people are hateful, it hurts. We have been through hell, are in hell with no sight of getting out anytime soon. SO much is going on...so a little help would be nice. Everyone has their problems, yes. I try and be there for others, no matter what. But sometimes I need someone. Sometimes I need to cry and mourn my birth, and feel upset and angry because this happened. Just once in a while I need to let go and feel.
I spend so much time blocking out how I feel and stay strong so that I can keep going and make things happen for him. My husband does so much, I do not want to put more on him...
please understand how hard this is and put yourself in our shoes...for one moment and realize I space out sometimes, I am sleep deprived and doing all I can to make things better for all involved. To top everything off we have some crazy ish going on lately and now having to find a new place to live. I am stressed, I am human. I am not ignoring anyone and I am trying to make a living and everything else that my husband and I do...
not exactly sure where I was going with this post...seems it turned more into a vent. I am exhausted. Please share this blog with others, get the word out. More to come.